Below is a range of services that provide information and support to patients, families and carers dealing with serious and life-threatening illness.
Adolescent and Young Adult Palliative Care
The ONTrac at Peter Mac Victorian Adolescent & Young Adult Cancer Service is a statewide cancer Service for young people and their families located at the Peter MacCallum Cancer Centre in East Melbourne.
The program involves staff from the Royal Children’s Hospital, Very Special Kids and Monash Medical Centre. The team doesn’t provide direct patient care. Rather, team members facilitate better communication between tertiary institutions and care providers in the community, enabling more children to be cared for at home by palliative care agencies and other services.
The program is not restricted to children with cancer but is available to the family of any child with a life-threatening or life-limiting illness.
Very Special Kids provides counselling and support services to families caring for a child diagnosed with a life-threatening condition. Following the death of a child families are supported through the bereavement support program. It also operate Very Special Kids House an eight bed children’s hospice, providing planned and emergency respite and end-of-life care.
The Cancer Council offers a range of programs that strive to reduce the impact of cancer by providing reliable information and compassionate support to people living with cancer, their family and friends.
Working in partnership with its member agencies, GRICS aims to promote the development of a sustainable, integrated and multidisciplinary approach to the provision of cancer services across the Gippsland region.
Peak Palliative Care Bodies
Palliative Care Australia is the peak national organisation representing the interests and aspirations of all who share the ideal of quality care at the end of life for all.
Palliative Care Victoria Inc (PCV) is the peak body representing palliative care providers, consumers and their families and those with an interest in palliative care in Victoria.
Alzheimers Australia (includes Dementia)
Alzheimer’s Australia champions the needs of people living with dementia, and their families and carers. As the peak body and charity for all types of dementia, it provides advocacy, support services, education and information.
The AMR is a stand-alone database that contains information about people with mesothelioma. The site monitors all new cases of mesothelioma diagnosed from 1st July 2010 in Australia.
CareSearch is funded by the Australian Government Department of Health and Ageing and is a good starting point for information for patients and families on palliative care, resources and finding services across Australia.
Carers Victoria work closely with government and other support organisations to improve the lives of caring families throughout Victoria.
GriefLine provides clients with free anonymous telephone support, online counselling and education and training programs.
Motor Neurone Disease (MND) Australia is the Peak body of the State MND Associations and was formed in 1991 in response to the increasing number of people (and their families and carers) living with MND in Australia.
Victorian Department of Health
This site outlines the Victorian Government’s Palliative Care Program, policy and strategic directions.