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Palliative Care in Aged Care Resources

Below are a set of links that are useful in Palliative Care especially for the aged care sector.

Referral to Palliative Care

In 2017-18, the GRPCC partnered with the Gippsland Primary Health Care Network (GPHN) in a project to improve access for people with complex palliative care needs residing in RACF, to specialist palliative care services. In collaboration with the RACFs and local palliative care services, existing informal referral processes from RACF to palliative care services were mapped in each of the  local government areas (LGA) ; West Gippsland, Latrobe, Central Gippsland, East Gippsland, South Gippsland, and Bass Coast.

Working parties were formed in each LGA and key stakeholders were invited to work collaboratively to form a palliative care referral pathway that utilised local resources and health service structure to formalise or initiate referral processes from RACF to specialist palliative care (via local palliative care services) for clients with complex or unmet palliative care needs.

Click on the link below to view the Palliative Care referral pathway for your area

Bass Coast pathway for health professionals
Bass Coast pathway for RACF 

Baw Baw pathway for RACF

East Gippsland pathway for RACF

Latrobe pathway  for RACF

South Gippsland  pathway for RACF

Wellington pathway for RACF

Documents and Tools

Abbey Pain Scale

The Abbey Pain Scale was developed to measure pain in patients who cannot verbalise.

Click here to view the Abbey Pain Scale.

Bereavement Support Booklet for Residential Aged Care Staff

The Bereavement Support Booklet for RAC staff aims to assist staff to better understand the experience, risks and impacts associated with loss and grief in the workplace. It outlines self-care and workplace strategies to support staff to manage loss and grief.

Click here to view the Bereavement Support Booklet for Residential Aged Care Staff.

Guidelines for a Palliative Approach in Residential Aged

Guidelines for a Palliative Approach in Residential Aged Care are evidence-based guidelines developed by the Australian Palliative Residential Aged Care (APRAC) project team. The guidelines aim to provide support and guidance for the delivery of a palliative approach in residential aged care facilities across Australia.

Click here to be directed to the NHMSC website.

Residential Aged Care – End of Life Care Pathway

This End of Life Care Pathway (EoLCP) document is a consensus based, best practice guide to providing care for residents in Residential Aged Care Facilities (RACFs) during the last days of their lives. The entire document forms part of the resident’s medical record.

Click here to view the Residential Aged Care – End of Life Care Pathway.

Residential Aged Care Palliative Approach Toolkit

The Palliative Approach Toolkit is a comprehensive, step-by-step guide to implementing a palliative approach in residential aged care facilities (RACFs). The toolkit includes policies and procedures and education for staff, as well as resources for friends and relatives of residents in RACFs.

The Palliative Approach Toolkit - Self directed learning package Toolkit

The Palliative Approach Toolkit – Self directed learning package contains three self-directed learning packages to assist RNs, ENs, and careworkers, working through key concepts and issues in the implementation of a palliative approach in Australian residential aged care facilities.

Click here to view the Palliative Approach Toolkit.

Guide to the Pharmacological Management of End of Life (Terminal) Symptoms in Residential Aged Care Residents – A Resource for General Practitioners

This guide designed for GP’s focuses on the pharmacological management of end of life (terminal) symptoms commonly experienced by residential aged care residents in the last days or hours of life.

Click here to view the Guide to the Pharmacological Management of End of Life (Terminal) Symptoms in Residential Aged Care Residents for General Practitioners.

Guide to the Pharmacological Management of End of Life (Terminal) Symptoms in Residential Aged Care Residents

This guide designed for clinical teams providing end of life (terminal) care in residential aged care settings, including residential aged care staff, medical officers and nurse practitioners. It focuses on the pharmacological management of end of life (terminal) symptoms commonly experienced by residential aged care residents in the last days or hours of life.

Click here to view the Guide to the Pharmacological Management of End of Life (Terminal) Symptoms in Residential Aged Care Residents.

Supportive and Palliative Care Indicators Tool (SPICT)

The SPICT™ is used to help identify people at risk of deteriorating and dying with one or multiple advanced conditions for holistic, palliative care needs assessment and care planning.

Click here to view the Supportive and Palliative Care Indicators Tool.

The GSF Prognostic Indicator Guidance

This updated fourth edition of the GSF Prognostic Indicator Guidance, supported by the RCGP, aims to help GPs, clinicians and other professionals in earlier identification of those adult patients nearing the end of their life who may need additional support.

Click here to view the GSF Prognostic Indicator Guidance.

Dementia Resources

Decision-making frameworks in advanced dementia: Links to improved care (drop down info)
As part of the ‘Decision-making frameworks in advanced dementia: Links to improved care’ project, a suite of reference booklets and guidelines were developed to assist in the management of people with advanced dementia.

Dementia

This guide, for families and friends of people with severe and end stage dementia, will inform carers about what will happen to a person living with the final stages of dementia, and will encourage them to consider in advance some of the issues that might require decisions from you about the care of the person with dementia.

Click here to view the Dementia booklet.

Agitation Decision-Making Framework

Agitation Decision-Making Framework is a guide for nurses and care staff caring for people with advanced dementia.

Click here to view the Agitation Decision-Making Framework booklet.

Pain Management Decision-Making Framework

Pain Management Decision-Making Framework is a booklet containing supportive information for nurses and care staff caring for people with advanced dementia.

Click here to view the Pain Management Decision-Making Framework booklet.

Weight Loss in Advanced Dementia

Weight Loss in Advanced Dementia is an information booklet for family members discussion the many reasons why a person with advanced dementia might lose weight.

Click here to view the Weight Loss in Advanced Dementia booklet.

Talking about DEMENTIA and Dying

Talking about DEMENTIA and Dying is a discussion tool for residential aged care facility staff. It is a resource to help people working in facilities to openly communicate with people with dementia and their families and friends about death and dying.

Click here to view the Talking about DEMENTIA and Dying booklet.

Centre for Cultural Diversity in Ageing - Inclusive Service Standards

The Inclusive Service Standards provide a new framework that will support organisations on their journey to becoming truly inclusive for all consumers. The Inclusive Service Standards comprise three standards that guide organisations through articulating their commitment to inclusive services, developing systems that support inclusive services and ensuring that there is capacity to deliver inclusive services.

Click here to view the Centre for Cultural Diversity in Ageing – Inclusive Service Standards.

 

Useful Websites

Websites are an excellent resource for information for health professionals on policies and procedures, best practice, skills and training, research and publications. Below are valuable websites to assist health professionals with the management of palliative care in aged care.

Caresearch - Residential Aged Care Hub

CareSearches dedicated residential aged care page, provides trustworthy information about working in RAC, care issues, recognizing residents needs, facility issues, communication, and information for residents and families.

Click here to be directed to the Caresearch residential aged care webpage.

PalliAGED

PalliAGED makes it easy to find and use palliative care evidence and practice resources in aged care.

Click here to be directed to the PalliAGED website.

Palliative Care Bridge

The Palliative Care Bridge delivers innovative educational videos and resources on palliative care by respected experts and specialists in their fields. It aims to better equip users of the site to gain confidence and specialised knowledge in the delivery of appropriate palliative care to people in need.

Click here to be directed to the Palliative Care Bridge website.

The Centre for Cultural Diversity in Ageing

The Centre for Cultural Diversity in Ageing provides expertise in culturally inclusive policy and practices for the aged services sector. They have over 20 years of experience in supporting aged care providers to address the needs of older people from culturally and linguistically diverse backgrounds.

Click here to be directed to the Centre for Cultural Diversity in Ageing website.

Disclaimer: GRPCC provides these links for information purpose only and is not responsible for the content of these websites. If you notice any of the links are broken, or would like to suggest additional information resources to be added, please contact us.